Rare Disease Day is an annual event coordinated by EURORDIS (European Organisation for Rare Diseases) at the international level.

Policies in healthcare and social services which have proven beneficial to people living with rare diseases should be standardised and replicated internationally. This is the idea behind the Europeans Unions core for countries to develop national plans for Rare Diseases. This initiative is intended to improve coordination of rare disease policies at a national level- following a common plan- to harmonise across the globe.

The focus for this year reminds us that tackling rare diseases with an international perspective is significantly important in terms of research developing health policies and for millions of people affected by rare diseases and their families throughout the world who can break out of their isolation into an international community of solidarity.

There are over one hundred million people

living with a rare disease around the world.

Take down borders, for rare disorders.

Show your solidarity today.”

Useful links:



 Rare Diseases Europe,

 National Organisation for Rare Diseases,