Rare Disease Day 2017 Australia events

One of our 2017 Rare Disease Day goals is to feature Rare Disease Day specific events around Australia. They can be big and small.

Be aware that we cannot guarantee that all information is accurate and complete. Always check with the organisers for up to date information.

If you are holding an event in celebration of Rare Disease Day 2017 and would like to feature it on our site, simply fill out and submit the form below.

Best of luck with your event!

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Rare Disease Educational Workshop

March 14, 2014 - March 15, 2014

The APSU is hosting a workshop for parents, carers and support groups highlighting the impacts of living with a rare disease for your child, your family and the health system.

Day 1: Friday is designed for health professionals, policy makers and researchers and is centred on “Recent developments in rare diseases research, health serviced and policy”

Day 2: Saturday is designed for parents, carers and support groups. The focus of day 2 is “Exploring the impacts of rare diseases – your child, your family and the health system”


March 14, 2014
March 15, 2014


Australian Paediatric Surveillance Unit


Kids Research Institute at Westmead
Level 2, Research Building
Westmead, NSW 2145 Australia
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