Archive for the share your story Category

PCD is what I have, not who I am

PCD is what I have, not who I am

I feel lucky reading some of the other stories of rare diseases. I was diagnosed at 28 with a genetic condition Primary Ciliary Dyskinesia. There is no cure. I have […]

Read more

Inspiring Imogen

Inspiring Imogen

My pregnancy with my daughter was just like any other with morning sickness and cravings. It all changed at 36 weeks pregnant. I went for a routine check-up with my […]

Read more

Miracle Marley’s CDH Journey

Miracle Marley’s CDH Journey

Marley Jayne was born 36 weeks after her mums water broke, an ultrasound found Marley’s bowels were in her chest compromising her lungs.  There appeared to be no left diaphragm, […]

Read more

Gastroparesis

Gastroparesis

My name is Anneliese and I have a condition called Gastroparesis. I have a public Facebook page called “The Tube Fed Mum” and I have had many people all over Australia inboxing me […]

Read more
Page 1 of 2912345...1020...Last »