Blaze’s Story – NF1

rdd-logoMy son Blayze who is 4 (5 in March) has NF1, Kaposiform Hemangioendothelioma (KHE) and Coats Disease of the left eye. He also has an optic nerve glioma, a symptom of his NF1. This is a clip of his story shared by Little Wings, a childrens charity providing flights for us to and from treatment.
Thank you 🙂