Neurofibromatosis Type 1


When I was three I was diagnosed with Neurofibromatosis Type 1, after my parents noticed multiple cafe au lait spots over me. After multiple tests and scans, they concluded I had NF1. I have a malignant tumour on my right optic nerve, thankfully, it’s not cancerous yet, and several benign tumours on top of my brain. I have speech and coordination problems that used to affect me daily, after lots of help and practice my speech and coordination has improved drastically.

Thankfully, my condition isn’t as severe as the others who have been diagnosed. I have yet to find neurofibromas and have never had to have surgery. But I would love to thank the Children’s Tumour Foundation and Princess Margeret Hospital in Perth for everything they’ve done and for all the other kids with NF. It’s really appreciated.