Stargardt’s Disease

Stargardt’s disease is a juvenile form of macular degeneration. It affects the central vision and leads to legal blindness.

I was diagnosed with Stargardt’s when I was 24 and am now legally blind at 28. The past four years have been tumultuous – I have had to cease driving, lost my independence, couldn’t maintain my job and spiraled into depression and anxiety.

I am now working toward regaining my independence in a new way, have returned to university to study psychology and am in my final year. I also write a blog to help share my experiences and other information with people from all over the world. This has been a huge part in my journey, being able to connect with others.

I would love juvenile forms of blindness to be better acknowledged in our community, and for diseases like Stargardt’s to be more widely known.

1 Comment
  1. My son is almost 7 and he has an unknown retinal disease and is legally blind. There are alot of young people with eye diseases and like you I hope one day there will be more knowledge of these rare diseases.