Hi my name is Roslyn. I am 40 and I have Kearns-Sayre Syndrome. I have three beautiful girls and a new granddaughter. I had just beaten breast cancer to find out I had KSS.
I haven’t found anyone in Australia with this as yet. I have found two other people with the same condition, one in the US and one in the UK. I would love to find more people with KSS to keep contact with for support.
What is your story? Share with us your stories and help to build a community to assist those affected by rare diseases to feel less isolated.. Thank you!