Welcome to Rare Disease Day Australia 2013
World Rare Disease Day raises awareness about rare diseases and the impacts they have on those affected personally and their families.
This year’s focus “Rare disorders without borders” marks the 6th annual World Rare Disease Day on the 28th February 2013.
For only the third time in Australia major organisations supporting rare diseases are coming together to highlight the issues surrounding people, especially children, living with rare diseases.
The Australian Rare Disease Day website provides a platform for those affected by rare disease to communicate and their experiences as well as raising awareness in the general public.
Support us by liking our Facebook page, sharing your stories and becoming part of our online community.
Rare Disease Day Australia Video
Look out for the following key promotions:
- Community Service Announcement on TV the Week of February 25th – Featuring Aiden, Renee, Tom, Tracy, Lisa Forrest, Steve Waugh, Georgie Parker and Joh Bailey, to air on major TV stations across Australia; Ch 9, 7, 10, PRIME, WIN, Southern Cross Austereo.
- Ch 9 TODAY Weather crosses on Thursday February 28th – Steve Waugh and families on the day
- Ch 7 SUNDAY March 3rd a 2 part feature on the same night; Steve and Lynette Waugh and Grant Recipients Renee Eliades and Liam Titterton
- Various Regional TV and radio news broadcasts across 40 major National media networks all receiving a pre-packaged newsroom edited Video and Audio News Release featuring interviews with Steve Waugh; Professor John Christodoulou, rare disease expert, the Children’s Hospital, Westmead; Associate Professor Yvonne Zurynski, Australian Paediatric Surveillance Unit (APSU); and Sharen and Chris Farrell, parents of two boys living with Arts Syndrome.
…and other TV, Radio and Print media stories in progress…
Community Service Announcement Talent Team
(L-R) Thank you to Lisa Forrest, Tom, Joh Bailey, Aiden, Steve Waugh, Renee and Tracy
Rare Disorders Without Borders Official Video
When it comes to rare diseases, it’s a small world after all! This amazing official Rare Disease Day 2013 video takes the viewer on a magical journey to demonstrate the urgent need for global cooperation in the field of rare diseases.
The video draws its inspiration from the RDD slogan for 2013,”Rare Disorders without Borders”. Lets work together as an international community to find solutions for individuals and their families who are frequently isolated by their rare disease.
It is not just those that suffer directly from rare diseases that feel alone, often health professionals, researches, policy makes and other members of the community feel that they need support to fight the battle against rare diseases.
Mixing stop motion animation with live action, the very talented video director Carlo S. Hintermann has produced a thought evoking, poignant video for us all to enjoy and to help continue the Rare Disease discourse.